Screen 1

Interview Date

How did you hear about us?

scr1_recruited n Percent
Peer referral 332 71.7
Screening event 9 1.9
Gay City News 1 0.2
Metro ad 75 16.2
amNewYork ad 25 5.4
Other 21 4.5

Where is this interview taking place?

scr1_loc n Percent
Over the telephone 792 93.0
HTH2 Field Site 20 2.3
Other 40 4.7

As far as you remember, did you participate in the “Heart to Heart 1” Project, which was conducted by NYU in 2012-2014?

scr1_hth1 n Percent
No 802 94.2
Yes 9 1.1
Don’t Know 39 4.6
Refuse to Answer 1 0.1

What was your biological sex at birth?

scr1_sex n Percent
Male 557 65.5
Female 293 34.4
Refuse to Answer 1 0.1

Current age (automatically calculated)

Younger than 36

rand_condition n Percent
Younger than 36 110 12.9
36 or Older 741 87.1

Where have you been living during the past month, that is, what borough or other location?

scr1_livingin n Percent
Manhattan 243 28.6
The Bronx 339 39.8
Queens 41 4.8
Brooklyn 214 25.1
Staten Island 12 1.4
Larger NYC metropolitan area 1 0.1
Outside NYC metropolitan area 1 0.1

Do you have any plans to leave the New York City metropolitan area in the next year?

scr1_leave n Percent
No 835 98.2
Yes 15 1.8

Do you consider yourself Hispanic/ Latino?

scr1_ethnicity n Percent
No 650 76.5
Yes 200 23.5

How would you describe your racial background: that is, which group or groups describe you best?

a, Native American or Alaskan Native

scr1_race___a n Percent
Unchecked 827 96.8
Checked 27 3.2

b, Asian

scr1_race___b n Percent
Unchecked 849 99.4
Checked 5 0.6

c, Black or African-American

scr1_race___c n Percent
Unchecked 206 24.1
Checked 648 75.9

d, Native Hawaiian or Pacific Islander

scr1_race___d n Percent
Unchecked 850 99.5
Checked 4 0.5

e, White

scr1_race___e n Percent
Unchecked 796 93.2
Checked 58 6.8

f, Other

scr1_race___f n Percent
Unchecked 756 88.5
Checked 98 11.5

g, Don’t Know

scr1_race___g n Percent
Unchecked 804 94.1
Checked 50 5.9

h, Refuse to Answer

scr1_race___h n Percent
Unchecked 852 99.8
Checked 2 0.2

Can you take part in activities that are conducted in English and/ or Spanish?

scr1_lang n Percent
No 4 0.5
Yes 845 99.5

Have you ever been told you have HIV?

scr1_hivstat n Percent
No 7 0.8
Yes 843 99.2

Think about when you were first told you have HIV. Was that within the past 6 months?

scr1_firsthiv_6mths n Percent
No 819 97.2
Yes 24 2.8

Was that within the past year?

scr1_firsthiv_recently n Percent
No 758 92.8
Yes 59 7.2

We know people sometimes decide not to start HIV medication, or they start and stop HIV medication. In your whole life, have you ever taken HIV medication, also called antiretroviral therapy?

scr1_hivmeds n Percent
No 61 7.4
Yes 758 92.6

Have you taken HIV medication or antiretroviral therapy at all in the past 6 weeks?

scr1_meds_past6wks n Percent
No 208 27.5
Yes 547 72.3
Don’t Know 2 0.3

How much of your HIV medication did you take in the past 6 weeks?

n Mean sd Median IQR Min Max
174 73 28 82 50 0 100

Did you take at least one HIV viral load test in the past 6 months?

scr1_meds_past6wks_q2 Count Percent
No 14 8.0
Yes 159 91.4
Don’t Know 1 0.6

We want to know the result of your last HIV viral load. Were you told the result of that viral load test was “undetectable”?

scr1_meds_past6wks_q3 Count Percent
No - not undetectable 35 22.0
Yes - undetectable 115 72.3
Don’t Know result 9 5.7

Have you ever seen a health care provider specifically for your HIV medical care?

scr1_provider Count Percent
No 23 8.5
Yes 248 91.5

We know it can be hard to make it to health care appointments. In the past year, how many different times have you seen a health care provider specifically for your HIV medical care, if at all?

scr1_appts Count Percent
0 8 3.2
1 25 10.1
2 67 27.0
3 60 24.2
4 39 15.7
5 or more 49 19.8

Think about these appointments you attended for HIV Care. Were 2 of them at least 3 months apart, as far as you remember?

scr1_appts_apart Count Percent
No 14 10.1
Yes 122 87.8
Don’t Know 3 2.2

We know people sometimes have to miss their scheduled appointments without cancelling in advance. In the past year, how many appointments with your HIV health care provider have you missed?

scr1_appts_miss_year Count Percent
Never missed an appointment 22 9.7
Once in the past year 10 4.4
Twice in the past year 55 24.3
Three or more times in the past year 135 59.7
Don’t Know 4 1.8

We know people sometimes have to miss their scheduled appointments without cancelling in advance. In the past six months, how many appointments with your HIV health care provider have you missed?

scr1_appts_miss_recently Count Percent
Never missed an appointment 2 9.5
Once in the past six months 1 4.8
Twice in the past six months 2 9.5
Three or more times in the past six months 16 76.2

During the past month, how often have you heard noises or voices that other people say they can’t hear?

scr1_noises Count Percent
Never 181 71.3
Almost Never 18 7.1
Sometimes 41 16.1
Fairly often 6 2.4
Very often 8 3.1

Now we would like to ask about your experience with this interview. How likely would you be to recommend this interview to someone else?

scr1_recommend Count Percent
not at all likely 7 0.8
somewhat likely 66 7.8
very likely 450 53.1
completely likely 325 38.3

Are any of the following true, making the participant ineligible for the study?

scr1_ineligibles Count Percent
Person participated in HTH1 4 0.5
Participant disclosed info that makes him/ her ineligible 224 26.5
Other 1 0.1
Not Applicable 616 72.9

Do you have written documentation of your HIV status with you today and would you be willing to show it to the interviewer now?

scr1_docs Count Percent
No 9 60
Yes 6 40

Select the written documentation you have seen of participant HIV status

scr1_docs_choices Count Percent
HIV Lab results 1 16.7
Full Medical Record with diagnosis and name 3 50.0
HIV meds or prescription w/ participant’s name 2 33.3

Would you be willing and able to provide written documentation of your HIV status later to participate in another part of this study?

scr1_docs_notice Count Percent
No 1 0.5
Yes 217 99.5

Reasons for Ineligibility

Too Young (<18)

Too_Young Count Percent
FALSE 850 99.5
TRUE 1 0.1
NA 3 0.4

Too Old (>65)

Too_Old Count Percent
FALSE 820 96.0
TRUE 31 3.6
NA 3 0.4

Residence Outside of Study Area

Outside_NYC Count Percent
FALSE 853 99.9
TRUE 1 0.1

Planning to Leave Study Area Within Next Year

Leaving_NYC Count Percent
FALSE 835 97.8
TRUE 15 1.8
NA 4 0.5

Neither Latino/Latina Nor African-American

RACETH Count Percent
FALSE 816 95.6
TRUE 38 4.4

Cannot Take Part in Activities in Either English or Spanish

Language Count Percent
FALSE 845 98.9
TRUE 4 0.5
NA 5 0.6

Participated in HTH1

HTH1 Count Percent
FALSE 802 93.9
TRUE 49 5.7
NA 3 0.4

Does Not Self-Report HIV Infection

HIVNEG Count Percent
FALSE 843 98.7
TRUE 7 0.8
NA 4 0.5

Diagnosed with HIV Infection Within the Past Six Months

RECENTDX Count Percent
FALSE 819 95.9
TRUE 24 2.8
NA 11 1.3

Took ART Within the Past Six Weeks

RECENTART Count Percent
FALSE 210 24.6
TRUE 547 64.1
NA 97 11.4

Good HIV Appointment Attendance

ENGAGED Count Percent
FALSE 231 27.0
TRUE 16 1.9
NA 607 71.1

Often Heard Noises or Voices Other People Cannot Hear

Noises Count Percent
FALSE 840 98.4
TRUE 14 1.6

Screen 2A

Interview Date

Do you agree to give us information so we can contact you in the future? You can decline to give us contact information, but you will need to give us contact information to participate in this study.

scr2a_consent_contact Count Percent
Yes 155 100

Do you agree to show us proof of your HIV status? You can decline to provide proof of HIV status, but you will need to show us proof of your HIV status to participate in this study.

scr2a_consent_proof_status Count Percent
Yes 155 100

Do you agree to give us a hair sample or blood sample? You can decline to give a hair or blood sample, but you need to give us a hair or blood sample to participate in this study.

scr2a_consent_sample Count Percent
Yes 155 100

Do you have written documentation of your HIV status with you today and would you be willing to show it to the interviewer now?

scr2a_docs Count Percent
Yes 149 100

Select the written document you have seen of participant HIV status

scr2a_docs_choices Count Percent
M11Q Form 6 4.0
HIV diagnosis letter on letterhead from testing site (NOT anonymous testing site) 3 2.0
HIV Lab Results 52 34.9
Full Medical Record with diagnosis and name 21 14.1
HIV meds or Prescription w/ participant’s name 58 38.9
Other 9 6.0

Please write the name of the written document you have seen that documents the participant’s HIV status:

scr2a_docs_other
letter from PCP in letterhead
Letterhead from HASA with pt’s full name
letter on letterhead from Housing Works case manager
letter from HIV program, on letterhead, with diagnosis information
HASA letter
HIV diagnosis letter on letterhead from HIV day program
RNA Bioref results with us
Official letter from pt’s counselor at Housingworks, detailing pt’s HIV status.
HASA housing letter with letterhead

Would you be willing to provide a few pieces of hair from your head that we will test for HIV medications? This test is only for the research and not for medical reasons.

scr2a_hairsampleconsent Count Percent
Yes 155 100

Would you be willing to have a sample of your blood taken by a needle so that we may test it for CD4 count and HIV viral load? This test is only for the research and not for medical reasons.

scr2a_docs Count Percent
Yes 149 100

Would you be willing to let the study contact your medical provider, if you have one, to get information about your care? This is only for the research and not for medical reasons.

scr2a_bloodsampleconsent Count Percent
Yes 155 100

Would you be willing to let the study contact your medical provider, if you have one, to get information about your care? This is only for the research and not for medical reasons.

scr2a_mrfconsent Count Percent
Yes 155 100

Would you be willing to participate in a one-time program (lasting about 1 hour) with a staff member where you learn more about the study and HIV disease and treatments?

scr2a_particpateconsent Count Percent
Yes 155 100

Would you be willing to be randomly assigned, which means being chosen by chance, to participate in one or more programs that focus on HIV care and treatment, for between about 3 and 8 months?

sc2a_randconsent Count Percent
Yes 155 100

Is the participant preliminarily eligible?

scr2a_prelim_eligibility Count Percent
Pre-eligible 155 100

Screen 2B

Interview Date

Hair sample obtained?

scr2b_sample_hair Count Percent
No 107 71.8
Yes 42 28.2

Date hair sample collected.

ART detected?

scr2b_shair_status Count Percent
NA 152 100

Blood sample collected?

scr2b_sample_blood Count Percent
Yes 152 100

Date blood sample collected.

Date blood sample sent.

Date blood sample results received.

Name of blood test performed.

scr2b_sblood_ttype Count Percent
HIV-1, RNA, ULTRA/PCR, VIRAL LOAD 149 99.3
iMMUNE DEFICIENCY PANEL CD4/CD8 w/CBC 1 0.7

Please write the name of the blood test performed:

scr2b_sblood_ttype_other

Blood sample result <= 1000 pp/mL?

scr2b_sblood_status Count Percent
No 60 40.3
Yes 89 59.7

If No, enter absolute value (log10 transformed)

n Mean sd Median IQR Min Max
60 5 1 5 1 3.158362 6.303196

Is the participant eligible?

scr2b_final_eligibility Count Percent
No: Not Eligible 89 59.7
Yes: Eligible 60 40.3